Adriana has trouble with her left hand.
It trembles sometimes.
That’s how one of her doctors suspected she might have SMA.
Her trembling hand.
It doesn’t have the same range of motion as her stronger right hand. And she often keeps it in a closed position.
We try to massage the muscles in her hand and forearm to loosen things up.
She hates it, though.
She pulls away as if to say, “leave me alone, I’m fine.”
Her actual words are usually, “no I don’t want that!”
But she can, and does, use her left hand.
We have to constantly reminder her to open up her hand when she reaches for her cup or other objects.
But she tries.
And she succeeds.
Patient in prayer
A beautiful, sunny day at a nearby park.
When we pray, Adri asks us to wait for her.
She’ll slowly open up her left hand to meet her right.
She joins her fingertips in a namaste-like hand position.
She’s patient when she prays. She takes it slowly, whereas Santi likes to speed pray.
Recently, I “caught” her praying on her own.
It happened while the kids were on vacation from school last week.
Santi and Adri enjoying some sun
We visited a nearby park every day to get outside and get some fresh air.
Well, as fresh as you can get in a city of 8 million people.
With the sun coming out more, it was quite beautiful spending time together.
Santi went on his scooter.
Adri in her wheelchair.
She’s getting quite comfortable in her chair.
I love that she’s becoming more independent. And yet I’m angry that she’ll need to depend more on a wheelchair as she gets older.
Adri pointing at the flowers surrounding the Virgin Mary
But it really is a positive step in her life.
Anyway, back to Adri’s praying episode.
Some of the parks have religious statues. And quite often, you’ll see people stop and pray.
In the center of this particular park, there’s a statue of the Virgin Mary.
There’s a circular walking area and places to sit and rest.
Usually we get to the center where Adriana parks her wheelchair. She’ll tell me to take her out and hold her so we can run around with Santi.
This particular day, she stayed in her chair and rode around the center.
She stopped at the statue of the Virgin Mary and stayed there for a little while.
The day before, she had been admiring the flowers that someone had placed at the foot of the statue.
“Look at the pretty flowers,” she told me as I was carrying her around and we passed the statue.
This day, though, she went — by herself — to the statue.
I was close by, but not very close.
I figured she would come back to me and tell me to take her out.
Instead, she rode around a little more. She went through the center of the circular area and around again without looking at me or Santiago.
She was on her own.
She would pass people. Some would look at her and smile.
Others wouldn’t look at all. Not because they were uncomfortable seeing Adri in a chair. They were simply in their own worlds doing their own thing.
That actually made me feel pretty good.
Adri was just another person in the crowd.
Then, she returned to the Virgin Mary.
She still wasn’t calling for me, so I went and sat on one of the benches near her.
Santi brought his scooter over next to me.
I looked more closely and I noticed her hands together………namaste like.
She glanced over at me, looking a little embarrassed.
“I’m praying!” she said, almost annoyed.
“Oh, ok,” I responded and looked away.
She slowly opened her left hand again to meet her right.
She was having a conversation with the Virgin Mary.
I couldn’t make out the words, but she was talking to her.
“Ok, I’m done,” she told me.
I walked over to her.
“I prayed for all the flowers of the world……and for Luna,” she told me.
Luna is our dog in Colorado. Even though Luna lives with our friends now, we still consider her our dog.
I’m not quite sure why she prayed for flowers and for Luna.
Adri striking a pose on a recent road trip
It’s difficult to get into the mind of a three year old.
Innocent and simple……yet wise in its own way.
A thought did cross my mind, though.
Will the day ever come when she tells me, “I prayed for God to let me walk”?
That’s what I pray for, so why shouldn’t she?
But with her strong personality and her strong will, it wouldn’t surprise me that if, instead, she tells me, “I thanked God for making me who I am.”
She’s not going to let a disease like SMA get in her way.