Dare to be Remarkable–A SMA Documentary

I’ve written a number of times about this remarkable young woman who was diagnosed with Spinal Muscular Atrophy, Type 1, over 20 years ago.
Alyssa’s parents were told that she would not make it past her second birthday. Thankfully, Alyssa had other plans.
She’s done so much to raise awareness of SMA and raise money for research. She’s now raising money to fund her latest project, a documentary on her life.
Although we can’t donate much, we’ll give what we can with the hope that one day our Adriana will see it and realize she can do whatever she wants in life. Actually, anyone facing an obstacle in life will benefit from seeing this remarkable young woman’s story.
I hope you’ll consider donating as well.



I’ve always been extremely passionate about raising money and awareness for Spinal Muscular Atrophy, as well as doing whatever it takes to make a difference in this world. When I was ten years old, I dreamed of raising a simple $100 for my disease. I decided to pursue my love for art and designed greeting cards and calendars to sell where all proceeds went towards finding a cure. Almost ten years and thousands of dollars later, I embarked on my next journey: the annual fundraiser for Spinal Muscular Atrophy. And, as we are nearing our fifth annual event, I’m still in complete awe of how wonderfully supportive the community has been throughout the years. Then, finally, last year I had this crazy idea to begin a blog that depicted “a day in the life” of someone who has SMA. That so-called “crazy” idea happened to be the best decision…

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